There is a wealth of fantastic websites, pages, books, podcasts, brochures and videos to find out more about OCD. We have just included some of the more popular or common sites which are consistently referred to.
New Zealand based
Have a good look around the Mental Health Foundation site for events, peoples’ stories and information about OCD. There is also a link to the Fixate support group on the Mental Health Foundation website.
There are also links to two PDF brochures about OCD from the UK and USA (Understanding OCD and What you need to know about OCD).
The Mental Health Foundation website above also refers to many helplines in NZ.
Read about the relationship between Tourettes syndrome and OCD.
This is another useful webpage from IOCDF which lists several links to information about OCD and co-ocurring conditions especially in children (e.g Autism, ADHD and Aspergers).
Misophonia – sound sensitivity and /general stimulus overload.
More information about Tourettes and OCD is also available on the OCD Stories Episode 180.
Voices of Hope is a NZ website which is about providing help for those struggling with mental health issues by promoting mental well being, empowerment and recovery.
Like minds like mine is also a helpful website to explore about mental health and ways of combating discrimination and stigma.
Changing Minds is a national not for profit organisation operated entirely by those with personal experience of recovery from mental health and/or addiction issues. If you want to be more involved, check out this programme which is designed to train and support a growing network of people to champion positive mental health messages in communities.
Stuff that’s Loud is a Facebook page written by kiwi Clinical psychologist Dr Ben Sedley which deals with OCD. Check out his books below in the Books section.
Fight OCD is a New Zealand based project run by people diagnosed with Obsessive Compulsive Disorder, dedicated to publicly raising awareness as well as fighting stigma, discrimination and misinformation. You can find it by searching on Facebook.
Perinatal and postnatal OCD
There is help if you are experiencing intrusive thoughts if you are about to become or have recently become a parent. Information about support for new mothers experiencing mental distress is available her in New Zealand through the Perinatal Anxiety and Depression Aotearoa (PADA) charity. The contact, including where to seek professional help, support and advice is here including a section on OCD with further links.
You can also consult with your GP and ask for a referral to the DHB Maternal Health Service in your area (here is a link to the Auckland service for example), for specialised help.
For advice on how to find a NZ OCD specialist, see our Help in NZ section.
New Zealand psychologist Dr Natalie Flynn offers general advice about perinatal OCD in this article in the NZ Herald.
Here is an article from the Motherhood Project ‘The one they’d never heard about : Postpartum OCD
Useful international sites include the following:-
The OCD Stories podcast episode no 114, perinatal and postnatal OCD. See also Catherine’s website Taming Olivia and other links.
AUTISM Spectrum Disorder and OCD
Text articles about ASD + OCD
Steve Slavin, UK advocate for ASD + OCD:
Presentations on ASD + OCD:
Seminar presentation with Q&A.
Article and series of short videos.
IOCDF discussion panel of ASD/OCD includes 2 clinicians and an adult with lived experience.
Clinical articles and book about CBT treatment for OCD in people with ASD:
Recent book explaining how to adapt OCD treatment for people with ASD.
An excellent resource to find out about OCD, treatment, international events and how to get involved. There is so much valuable information on this site; it is definitely worthwhile to browse and checkout the various links to specific issues and advice. Some of the links are attached below.
There is wealth of information pertaining to Children and OCD on the IOCDF site too. Also worth checking out many of the links
Another great website with a wealth of information is OCD Action with further specific links about treatment below.
This is a useful article about the role of the GP and may help you to think of questions to ask your GP or help you be prepared to discuss compulsions which might be overt or hidden.
Articles, podcasts and videos
The links below provide information and advice for parents of kids with OCD.
Parenting blog https://www.anxioustoddlers.com/
Real stories that inspire and educate those with OCD. There are interviews with therapists and with people living with OCD. The stories include weekly podcasts, usually released on a Monday, and personal written accounts , usually about 45 minutes to an hour long. This is an excellent resource and covers a wide range of OCD topics. There are many episodes to listen to and you might not know where to start!
You might like to start with searching some of these episodes in the first instance as they provide some general information from authors of some books listed in the Resources section and therapists, e.g any episodes from Johnathan Grayson, Steven Phillipson, Jon Hershfield, Joan Davidson, Chrissie Hodges, Rose Cartwright ( nee Bretecher), Lily Bailey, Mark Freeman, Russ Harris and Sean Shinnock.
They are truly inspiring and uplifting, offer so much hope and you are sure to have many “ahh hah’ moments.
NZ Podcast called Just Listen which features various mental health stories and journeys. The first one linked here features OCD and is very honest, descriptive and also gives hope to others who live with OCD.
https://www.treatmyocd.com. Try this to help with your Exposure Response Therapy treatment.
You might like to approach your local library to order some of these.
There are so many books to choose from but the ones we have listed here include some accessible books as well as some which cover treatment and the various themes of OCD. These are some of the books which are referred to in the OCD Story podcasts when Stu Ralph, the founder, seeks good references from speakers on his podcast. Please read previews or reviews by visiting either Book Depository, Goodreads or Amazon.
Baer, L. 2001. Imp of the mind. New York. Penguin.
Challacombe, F., V.B. Oldfield and P. Salkovkis. 2011. Break free from OCD; Overcoming Obsessive Compulsive Disorder with CBT.Great Britain. Ebury Publishing.
Davidson, J. 2014 Daring to challenge OCD: Overcome your fear of treatment and take control of your life using Exposure and Response Prevention.Oakland CA. New Harbinger.
Grayson, J. 2004. Freedom from Obsessive –Compulsive Disorder; a personalised Recovery Program for living with Uncertainty. New York. The Berkeley Publishing Group.
Harris, R. 2007. The Happiness Trap. Australia. Exisle Publishing.
Hyman, B.M., T.Dufrene. 2008 Coping with OCD.Oakland, CA. New Harbinger Publications.
Hyman, B.M., and C. Pedrick. 2010. The OCD Workbook: your Guide to Breaking Free from Obsessive-Complusice Disorder, 3rdEd. Oakland, CA. New Harbinger.
Purdon, C,. and D. A. Clark. 2005 Overcoming Obsessive Thoughts: How to Gain Control of your OCD. Oakland, CA: New Harbinger
Schwartz, J., and B. Beyette. 1997. Brain Lock. New York. Harper Perennial.
Sedley, B. 2015. Stuff that Sucks. Great Britain. Robinson ( also watch out for his next book soon to go on sale in 2020 ‘Stuff that’s Loud’ and Ben’s Facebook Page by the same title).
Winson, S.M, and M.N. Seif. 2017. Overcoming Unwanted Intrusive Thoughts: A CBT based Guide to getting over frightening, obsessive, or disturbing thoughts. Oakland CA: New Harbinger.
Memoirs and Fiction Books
Adam, D. 2014. The Man Who Couldn’t Stop. London. Picador
Bailey, L. 2018. Because We Are Bad. OCD and a Girl Lost in Thought. Surrey. UK. Canbury Press
Bretecher, R. 2016. Pure.London. Unbound
Green, J. Turtles All the Way down. 2017. Dutton Books.
Toten, T. The Unlikely Hero of Room 13b
Youtube Clips, Documentaries and Movies
There are also many videos available: a few are listed below.
Unstuck An OCD Kids Movie – documentary about kids with OCD
Living with me and my OCD by Claire Watkinson
Cure my OCD:’ I thought I’d killed someone’. Documentary by BBC.COM
Watch this video for some home grown advocacy! Check out Fight OCD on Facebook for more information. (Given with permission from Sam).